About Rett Syndrome

Rett syndrome is a unique neurodevelopmental disorder that is first noticed in infancy and primarily affects girls, but can be rarely seen in boys. Rett syndrome has been most often misdiagnosed as autism, cerebral palsy, or global developmental delay. Rett syndrome is found in all ethnic and racial groups and occurs worldwide in 1 of every 10,000 to 23,000 female births.

Rett syndrome was discovered by Dr. Andreas Rett in 1966 when he published his finding in German medical journal but Rett syndrome got the attention of scientific community only after 1983 when Dr. Hagberg published his similar findings on Rett syndrome in an English-language journal and named the disease as Rett syndrome after the name of Dr. Andreas Rett.

Read more >>

About IRSF

Indian Rett syndrome foundation is a national association of Parents, Families, Doctors, Scientists, Health professionals and care takers of children with Rett syndrome and was established on 27th January, 2010. The mission of IRSF is:

Read more >>